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Confidentiality, consent and medical ethics news

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Malawi sex workers unite in push for better health care

Malawi's estimated 20,000 sex workers have united to fight harassment and improve access to health care, launching a registered alliance on Friday.

Published
12 November 2012
From
Africa Review
(PrEP) The ANRS-IPERGAY study should be discontinued : prevention research in France is in disarray

French HIV prevention activist group The Warning has issued a press release saying that the placebo arm of the French IPERGAY randomised controlled study of intermittent PrEP should be dropped. This is in response to a 31 October press release by the French National HIV Research Agency, ANRS, that said it should continue - see http://public.adequatesystems.com/pub/link/203893/034296629555571351674647159-anrs.fr.html . The Warning's position does not reflect the position of other French community organisations, which take positions from support of the IPERGAY trial as it is, to demanding PrEP be made available alongside the trial, to total rejection of it. See http://www.ipergay.fr/Les-avis-des-comites-sur-la-poursuite-de-l-essai-Ipergay_a91.html for a sumary of community reports to the trial co-ordinators (in French).

Published
09 November 2012
From
The Warning
French National HIV Research Agency decides to continue its Ipergay trial and creates a new working group on HIV prevention

The Ipergay trial, a placebo-controlled double-blinded trial of intermittent Truvada (tenofovir/FTC) taking place in France and Quebec, will continue as planned, it was announced today. Three committees consisting of trial researchers, independent experts, and community organisations have all approved the continuation of the trial with a placebo arm because it is the only was of establishing the clinical efficacy of PrEP taken only at times when people anticipate HIV exposure. The community committee asked for daily Truvada to be available if participants asked for it.

Published
31 October 2012
From
ANRS
Scale up of HIV testing in Africa isn't leading to breaches in consent or confidentiality

Efforts to scale up HIV testing in sub-Saharan Africa have not resulted in breaches of patient rights or the provision of poorer services, results of a study

Published
26 October 2012
By
Michael Carter
The fear of testing for HIV still exists!

A Ugandan female friend confided in me: “I fear to take an HIV test, because I may not have the energy to move back home when I am found to be HIV positive. I don’t know my status and I rather not know.”

Published
24 October 2012
From
Key Correspondents
Pre-marital HIV testing is a shortcut to nowhere

The Maharashtra government’s proposal is aimed at shielding women but it could end up adding to their vulnerability.

Published
15 October 2012
From
Tehelka
Surprise HIV test at Brooklyn clinic outrages woman, so she sues doctor over bad news

Harlem woman claims doctor violated law by giving her test against her wishes and gave her result without mandated counseling. She seeks damages for 'terror, confusion, embarrassment and emotional distress.'

Published
04 October 2012
From
New York Daily News
Canada: Protecting your privacy around HIV

The BC Civil Liberties Association (BCCLA) launched two new guides on HIV testing and patient rights, summarizing issues such as informed consent, non-nominal (no-name) testing, safeguarding medical privacy, limiting who can view medical information, and information about the criminal law and nondisclosure to sexual partners.

Published
28 September 2012
From
Xtra
In Romania, chance determines whether drug-resistant TB patients survive

In Romania, all drug-resistant TB cases are reviewed by a commission of doctors. The Commission members ultimately make a choice on who lives and who dies. This is an impossible choice described by one doctor as verging on malpractice—the knowing condemnation of patients to inferior medication because of budget constraints.

Published
25 September 2012
From
AlertNet
Ethics of hepatitis C drug pitch questioned

Ethicists said that the doctor's comments appear to have breached ethics principles by potentially leaving his audience with outsize hope for drugs undergoing testing. Doing so, they said, was particularly striking at a moment when patients felt violated and vulnerable.

Published
25 September 2012
From
Boston Globe

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